Friday, November 27, 2009

Another week of the Good and the Bad/ Plus Happy Thanksgiving!

As the title says I had a mix week..of  GOOD and BAD

Went to see Band of Skulls again  in Boston (thank you lil bro)(pic of me and lead singer of BOS)..awesome to get out and see the show..unfortunately it is hard standing at a concert in I had to go sit down for the 2nd half and take pain pills (first time I have taken them outside of my bedroom)..the concert became more relaxing afterwards that's for sure.  I am quite frustrated that I am having a lot of difficulty standing for any long length of time w/ out a huge amount of pain..ugh!

I am still recouping from my psaos tendon injection which has made for a uncomfortable 2 weeks..I guess my body doesn't like cortisone.. (great another thing to add to my list.. my body is too high maintenance it seriously needs to chill out and go w/ the flow) But this cortisone injection seem to produce a pretty bad flare up w/ my psoas tendon, but it is finally starting to calm down..not sure if I will be doing any more cortisone injections....

I had a night at the movies w/ nine of my friend..(movie name will remain anonymous..lets leave it at that)..LOOOOONG Movies are just hard to sit through at the friends did hook me up w/ a luxury seat theater (only 3 dollars more) and I had the aisle seat to stretch out a bit..It  was a nice distraction to see the cute shirtless dudes on the screen which again was a distraction from my hip..If you guess the teasing..everyone has there guilty pleasures ...;)

I had a happy Thanksgiving w/ my family..where I got to mix up sitting and standing and having my family distract me from my pain was just the bonus..I love my family it was a AWESOME Thanksgiving..minus the turkey (I am a vegetarian so It's just not my holiday..but I Love the family part)  Even though my hip is nothing but trouble..I feel very lucky and Thankful for all the body parts that are working well..yay..and thankful for all the amazing, helpful, kind, and inspiring people In my life..I am a very Lucky Woman!

 (Me and the newest member of my little cousin who came here from Ireland for the festivities..soooo adorable)

 Happy Thanksgiving to one and all!!!!

Thursday, November 19, 2009

A Full Circle

Went to Children's Hospital today to meet w/ the surgeon who may be doing my hip surgery..I guess I am still considered "young" ..their cut off is 35.. whew..just made it! ;)  So I have come back full circle at the moment since Children's Hospital is where it all began, but this time w/ a different Dr..(No Dr.McCrappy this time around )!
I saw Dr. Great (I like to give my Dr code names to keep their it's fun) He agreed w/ what Dr. Brilliant said after looking at my x-rays and giving me a physical exam.  He said that my impingement was pretty bad on my right side but my left side also has an impingement..wawawhat you say..I am right there w/ you....left side stay strong ..PLEASE!

His recommendation is as followed:

Revision arthroscopy,acetabuloplasty/labral refixation, osteoplasty of head neck junction and possible psoas release VS Open Surgical dislocation

So pretty much what that all means..They need to shave the bone of my head and neck of my hip so it fits into place nicely and stops tearing my labrum (the protective padding for my hip). and maybe release my psoas tendon because it has been in full spasm for two years and the injections don't seems to be helping that much. Unfortunately Dr. Great thinks the only way to do this successfully is through open surgery due to the fact of the damage my hip already has and the scar tissue from my previous two surgeries.  Open Surgery also require putting screws in my hip and having them removed a year from a lot longer hospital stay and recovery.

Ok the good news (yes there is some) my hip could be fixed once and for all, my pain can go away for the most part (YES!) and I may never need to get a hip replacement ,because of this surgery or at least it will save my hip for a loooooooooooong time from being replaced, and by that point medical science may be able to fix things w/ lasers or something cool like that and Dr's wont be playing w/ knives and scalpels anymore..hey you never know..medical science/technology moves fast!

So now Dr. Great is sending me to his partner at Children's who does the open surgery for this particular surgery to consult w/ him and see what he has to say ,and then I get to make my decsion on what to do.  So I should have more info in 2 1/2 weeks. Until then lots of ice, some water therapy PT for pain, and pain meds..good times...uh not!    But I will try to put on a happy face and keep on keeping on till surgery..cause in my book that the only choice I got! 

Monday, November 16, 2009

Maybe I should be a DR!

So I finally had my Apt. at New England Baptist Hospital (it was a 3 month wait to get this apt) but it was worth the wait..I finally got some answers.  My biggest question I have had since this first began is ...WHY???  WHY did my hip tear while I was working out..(no trauma happened during the work out)...WHY did it happen again less than two years later...WHY did I never get any true relief from either one of my surgeries where I felt like I was my "normal" self again....WHY am I having a problem w/ my psoas tendon and sciatic nerve which I did not have prior to my first surgery..The answer....DRUM ROLL PLEASE

Impingement: Pincer FAI

What is it?
"Femoroacetabular impingement or FAI is a condition of too much friction in the hip joint.  Basically, the ball (femoral head) and socket (acetabulum) rub abnormally creating damage to the hip joint.  The damage can occur to the articular cartilage (smooth white surface of the ball or socket) or the labral cartilage (soft tissue bumper of the socket).
FAI generally occurs as two forms: Cam and Pincer.  The Cam form (Cam comes from the Dutch word meaning “cog”) describes the femoral head and neck relationship as aspherical or not perfectly round.  This loss of roundness contributes to abnormal contact between the head and socket.  The Pincer form (Pincer comes from the French word meaning “to pinch”) describes the situation where the socket or acetabulum has too much coverage of the ball or femoral head.  This over-coverage typically exists along the front-top rim of the socket (acetabulum) and results in the labral cartilage being “pinched” between the rim of the socket and the anterior femoral head-neck junction.  The Pincer form of the impingement is typically secondary to “retroversion”, a turning back of the socket, or “profunda”, a socket that is too deep.  Most of the time, the Cam and Pincer forms exist together.
FAI is associated with cartilage damage, labral tears, early hip arthritis, hyperlaxity, sports hernias, and low back pain.
FAI is common in high level athletes, but also occurs in active individuals."

So lets call My new lets see...Dr. Brilliant!  So Dr. Brilliant did x-rays of my hip..used his fancy plasma style flat screen monitor and showed me exactly where my hip is "troubled" I could actually see the hip impingement. This is why my hip keeps re tearing.... yes it is torn again....this is why I am in pain constantly....this is why I am not "fixed" yet, because they didn't actually fixed the problem in the other two surgeries..they only fixed the symptoms and the damage from the problem.

I can't even begin to express my frustration from this realization..if I did this would be the never ending blog instead my advice to anyone who may be going through a similar situation is don't give up..keep pressing for answers..get second, third ,or even a fourth opinion until you get someone who will dive into your case and look at it at from all angles. Dr's are human and they make matter what, you know your body better than anyone else and you know when something truly feels wrong. I have always asked this question of WHY to both my surgeons and I never got a real answer......until Dr. Brilliant.

The  reason I called this post "Maybe I should be a Dr." is because two years ago after my first surgery when I wasn't feeling better I did A LOT of research on hips and I thought FAI is what I had..but my surgeons at the time said no.  I guess in the end I was right!  If I were still talking to my other surgeons I would totally say.."I told you so"  hmmmm on second thought maybe I will....... ;)

So Now I am looking at another surgery...This time fixing the actual problem.  It's a much bigger surgery than my last two, but hopefully this will be the last.  But learning from my own mistakes I do have two more apts set up for second and third opinion before I let anyone cut into me again.  In the meantime I got two cortisone injections. One for Bursitis of my hip (4 weeks ago) and one two days ago into my psoas tendon because I have developed extreme iliopsoas tendinitis due to my hip.  Hopefully this will help w/ the pain while I wait to make my next decision.

On another note I had a Happy Hipster Birthday this week ..Even w/out being able to dance w/ my friends, or wear heels w/ my dress, or even being comfortable sitting down..I still had a lot of fun, because I fed off the energy of my friends and family which in turn made for a very  very happy birthday!

Also having a birthday makes you realize all the good things you have in your life ..that you survived another year through the good and the bad (and besides my hip my year has been great) and it also is a new start for a new year, new hope, and new hopefully this will even be a healthier and happier year for me.

Thank You to all my friends and family for making my birthday very special and for always being there for me! xoxox